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Direction-less
I wasn’t sure I wanted to write this but maybe it will help me vent my frustration. I’m nearly 25 and still at a community college.I am downright terrible at math which is the reason I am still at a...
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Sometimes parents need help
Parents of children with CHD’s face more than just the fear that their child’s lips are bluer then yesterday or that their sats are lower than they were yesterday.They face the realization that they...
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Finances
Having child in itself is not cheap but having a child with a chronic condition sucxh as a CHD is extremely expensive.Depending on the insurance your family has the copays for perscriptions or doctor...
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Marital Stress
Few people tend to recognize the stress having a CHD child puts on parents.Not only as parents but as husband and wife.No longer do they have time to sneak away for a day alone together or even an...
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Religion
I am not religious.Not in any way shape or form.Despite me being raised Catholic I have not gone to church regularly since I was ten.That said I do respect those who are religious and who do have...
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30th of every month
Six months ago I never cared what I wore on each day.I just threw on a pair of jeans and a t-shirt.All of that changed in the beginning of June when I met Kristine over Facebook.Her daughter Cora had...
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Irrational thought~Guilt
Every single time I have heard the term “survivors guilt” I have applied it to soldiers who watched their comrades get blown up or gunned down while at war.Today I realized I am suffering from...
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Anger
Quite bluntly anyone who claims that they do not ask “why me?” in hard times is just lying. It’s natural and normal to want to know why they must go through whatever they are going through. As human...
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Not Fair
I really really hate CHD’s.I have never had such a strong hatred for them as I have developed over the past few months.It’s not easy being an adult CHDer.We know better than CHD parents what these kids...
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Death of an Inspiration
I was having a good day at school until I checked my Facebook and was informed that a great CHD Advocate Steve Catoe had died last night.I was stunned as he had just posted a new blog entry yesterday...
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